epilepsy

Tatyana ‘Tuffy’ Rivera and her New Jersey Cannabis Activist Family

Tatyana ‘Tuffy’ Rivera and her New Jersey Cannabis Activist Family

Tatyana “Tuffy” Rivera and her parents, Ricardo and Jennifer, are at the fore of the New Jersey movement to continue working for safe access to cannabis. “Tuffy” used to take a combination of twenty five pharmaceuticals to treat Lennox-Gastaut Syndrome, a rare form of epilepsy; now that she is registered with New Jersey Compassionate Use […]

Pediatric Cannabis Patient Families Who Need Your Support

Pediatric Cannabis Patient Families Who Need Your Support

Imagine your child has a life-threatening illness that conventional pharmaceuticals have not been able to fully control. Now, imagine you’ve found something that does work (medical Cannabis) but you can’t access it on the legal market, do not qualify for it in a medical state, cannot be sure of its quality, and to top it […]

Connect the Dots in Connecticut with Cannabis

Connect the Dots in Connecticut with Cannabis

The following is an excerpt of a speech John Dvorak gave at the Hartford, Connecticut HempCT Marijuana Awareness Event: We all owe our presence here today to one person who’s worked tirelessly and countless hours organizing, planning, cajoling, lining up the speakers, the vendors, the sponsors and working with the city of Hartford to get the […]

Cannabis Kids: Tiny Icons for the End of Prohibition

Cannabis Kids: Tiny Icons for the End of Prohibition

There are numerous reasons why the prohibition of cannabis is a colossal catastrophe:  thousands killed fighting over black market profits, millions arrested, decimating our minority communities, and billions in agribusiness lost because our farmers can’t grow hemp.  Sadly, these tragic circumstances seem to fall on deaf ears as far as the public and our policy […]

Chloe Lucille Grauer-Lea Died While Waiting for Cannabis Oil

Chloe Lucille Grauer-Lea Died While Waiting for Cannabis Oil

The beautiful little girl named  Chloe Lucille Grauer-Lea from Memphis Tennessee, whose medical struggles inspired her parents to advocate for state and national medical marijuana law reform, has passed away. Born on October, 11th, 2011, Little Chloe’s three-year struggle ended last month on December 10th, 2014, when she was removed from life support after she […]

Brightening: Calvin is Two Weeks Seizure-Free, Thanks to Cannabis Oil

Brightening: Calvin is Two Weeks Seizure-Free, Thanks to Cannabis Oil

Today is day fourteen—two weeks since Calvin’s last perceived seizure—his longest seizure-free stint since July. It is possible that we could’ve slept through one—his unmistakable seizures now occurring exclusively at night—though I generally sleep lightly with the baby monitor alerting me from the bedstand near my head. I’d felt a seizure approaching a week ago—seen […]

Australia: Cooper’s Parents Will Not Be Pursued Any Longer for His Cannabis Treatment

Australia: Cooper’s Parents Will Not Be Pursued Any Longer for His Cannabis Treatment

Here’s some positive news from the land down under: 4-year-old Cooper Wallace can legally resume his cannabis oil treatment for his seizures and the child abuse investigation of his parents is finished. Cooper was only three when law enforcement raided his home and arrested his parents (while his mother was heavily pregnant, no less) for […]

I Am No Hero: What NOT to Say to Someone Who is Suffering

I Am No Hero: What NOT to Say to Someone Who is Suffering

Contributor Jill Hitchman-Osborn is the author of the Seizing Hope blog, which chronicles her journey parenting a child with epilepsy and her work as a cannabis activist. “A hero is an ordinary individual who finds the strength to persevere and endure in spite of overwhelming obstacles.” Christopher Reeve  I am no hero… 1. Please stop […]

Epileptic Calls 911 for Ambulance, Gets Beaten By Cops and Denied Medical Attention

Epileptic Calls 911 for Ambulance, Gets Beaten By Cops and Denied Medical Attention

Andrea Starr has had Juvenile Myoclonic Syndrome for some time, so she recognized the epileptic seizure she was experiencing on the beach for what it was. After repeatedly waking up, disoriented on the beach, Starr realized that she was likely experiencing tonic-clonic seizures on October 11th, 2014. Having been treated for her seizures for years and […]

CBD-Only Isn’t Enough: A Mom’s Letter to Lawmakers

CBD-Only Isn’t Enough: A Mom’s Letter to Lawmakers

Lawmaker, I hope you are doing well today. My name is Brittany Hardy. I am the mother of Jaqie Angel Warrior, a two year old little girl who suffers from a deadly form of epilepsy and uses cannabis oil to control her seizures. I am writing you this letter today in hopes you will listen […]