dravet syndrome

I Am No Hero: What NOT to Say to Someone Who is Suffering

I Am No Hero: What NOT to Say to Someone Who is Suffering

Contributor Jill Hitchman-Osborn is the author of the Seizing Hope blog, which chronicles her journey parenting a child with epilepsy and her work as a cannabis activist. “A hero is an ordinary individual who finds the strength to persevere and endure in spite of overwhelming obstacles.” Christopher Reeve  I am no hero… 1. Please stop […]

PARENTS 4 POT’S 2nd Annual Cannabis POW & Community Holiday Drive

PARENTS 4 POT’S 2nd Annual Cannabis POW & Community Holiday Drive

Parents 4 Pot loves to make a difference in the lives of those in the cannabis reform community. No one knows first hand how terrible this war is than the families of those who are struggling to make ends meet in their roles as an activist, medical refugee, or those serving time for cannabis. They are organizing Amazon.com […]

Genetic Study of Seizure Patients Who Respond To Charlotte’s Web Strain Underway

Genetic Study of Seizure Patients Who Respond To Charlotte’s Web Strain Underway

Researchers in Colorado are focusing on cannabis’ ability to alleviate seizures. Specifically, medical researchers at the University of Colorado Anshutz Medical Campus will be doing a study about the efficacy of the strain commonly known as Charlotte’s Web and its ability to help slow, decrease, or stop seizure activity in children with Dravet syndrome. The […]

What is Dravet Syndrome and Why Should You Care?

What is Dravet Syndrome and Why Should You Care?

Dravet syndrome is a condition that has been heavily referenced in a lot of mainstream media articles and reports about medical marijuana or the medical applications of cannabis. Many times, however, the condition is glossed over, leaving those who have never heard of it before wondering what Dravet syndrome really is. Dravet syndrome is genetic […]

You’re Invited: Parents Organize Birthday Party in Memory of Sabina Rose

You’re Invited: Parents Organize Birthday Party in Memory of Sabina Rose

Today, August 21st, 2014, would have been Sabina Rose‘s second birthday. Born with Dravet Syndrome, a severe form of epilepsy, beautiful, sweet Sabina passed away on December 2, 2013.  The most tragic thing about this little girl’s passing was that she was waiting for legal access to a high-CBD cannabis oil. She hadn’t responded well […]

A Limited Amount of “Caring”: Parents and Advocates React to Realm of Caring’s Federal CBD-Only Bill

A Limited Amount of “Caring”: Parents and Advocates React to Realm of Caring’s Federal CBD-Only Bill

Image: Jason and Jayden David, photo courtesy of Jason David  Congressman Scott Perry (D-PA), Representative Steve Cohen (D-TN) and Representative Paul Broun (R-GA) introduced the “Charlotte’s Web Medical Hemp Act of 2014” yesterday in Pennsylvania, flanked by representatives from Colorado’s Realm of Caring (RoC), the producers of the high-CBD low-THC Charlotte’s Web cannabis strain. According […]

Little Girl with Dravet Syndrome Dies While Waiting for Cannabis

Little Girl with Dravet Syndrome Dies While Waiting for Cannabis

Another little girl in the state of New York has passed away while waiting for safe access to cannabis. Anna Conte, a nine-year-old who suffered from Dravet Syndrome, passed away last week and was laid to rest yesterday. Her mother, Wendy Conte, was a part of the movement to pass the New York State medical […]

Ripples of Hope: Pennsylvania Parents Seek Broader Cannabis Legislation

Ripples of Hope: Pennsylvania Parents Seek Broader Cannabis Legislation

Photo: Latrisha Bentch and Dana Ulrich lobbying at the Pennsylvania State Capitol in Harrisburg By Latrisha Bentch and Dana Ulrich On May 2nd, 2014, several Pennsylvania families, ours included, received emails from the office of our Governor, Tom Corbett. We must admit; our initial reaction to the long overdue correspondence was not that of elation or […]

Mother/Activist Paula Joana Confronts Governor Chris Christie

Mother/Activist Paula Joana Confronts Governor Chris Christie

PHOTO: Lefty Grimes/Sativa Cross By now, many of you have already seen the footage of Paula Joana confronting New Jersey Governor Chris Christie yesterday at a town hall meeting in Fairfield. If you haven’t seen it already, here it is. Have some tissues handy before pressing play: Video credit: Lefty Grimes/Sativa Cross I wanted to […]

Cannabis and My Kid: Making Our Own THCA Medicine for Pediatric Epilepsy

Cannabis and My Kid: Making Our Own THCA Medicine for Pediatric Epilepsy

When my son Calvin was two, he suffered a forty-five minute seizure. The emergency medication that the hospital staff had administered seemed to be having no effect. In my research of epilepsy I had read that the longer a seizure lasts the harder it is to stop, so my husband Michael and I, fearing Calvin’s […]