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The beautiful little girl named Chloe Lucille Grauer-Lea from Memphis Tennessee, whose medical struggles inspired her parents to advocate for state and national medical marijuana law reform, has passed away.
Born on October, 11th, 2011, Little Chloe’s three-year struggle ended last month on December 10th, 2014, when she was removed from life support after she had suffered a severe seizure that put her into a coma and decreased her brain function.
Her parents told the local FOX affiliate that she had suffered an estimated 75,000 seizures as of November of 2014. Despite all their efforts, little Chloe never knew the relief of medical cannabis. The delays and roadblocks to safe access may well be responsible, as cannabinoids may have prevented or lessened the severity of that deadly seizure.
At a local memorial service, family, friends and supporters lit and released paper lanterns. A very touching video montage set to music was created by a friend of the family.
Chloe’s passing without ever getting to try cannabis oil is a tragedy that continues to repeat itself here in the United States. Even while public support for medical marijuana and even pediatric medical cannabis is at an all-time high, lawmakers at state and federal levels are dragging their feet about real reform. While Chloe’s parents were fighting for CBD-specific laws because of her seizure condition, the only way to actually solve this issue is federal legalization of medical marijuana.
No child should have to suffer because their parents can’t afford or otherwise aren’t able to uproot their family and lives to move across some invisible boundary line to a place where a medicine is now legally available. No parent should have to say goodbye to their child when a treatment option is out there, just beyond their legal reach. Families shouldn’t have to worry about prosecution for trying to help their little ones battle an intractable, debilitating and all too often deadly condition. Instead, they should be able to count on the support of the medical community and society in general as they do all they can to help the little humans entrusted to their care.
While cannabis law reform came too late for Chloe, her grandmother Gail Grauer is still dedicated to fighting for medical marijuana law reform in her memory. While Tennessee does not currently have any laws or amendments regarding medical cannabis in the works, Gail plans to attend all hearings and committee meetings when/if a new law is introduced to Tennessee lawmakers.
Those who wish to make a gift in her memory can do so by donating to the Le Bonheur Children’s Hospital (where Chloe was treated) in her name. There are also two Team Chloe Facebook pages, tracking the progress of reform bills that could have saved Chloe’s life and that will undoubtedly (if passed) help prevent similar tragedies in the future. Chloe will always be remembered by the people whose lives and hearts she touched, both in person and online, for her beautiful smile and her indomitable spirit.
For previous Ladybud articles about children and cannabis, click here.
Photo Credit: The Team Chloe Facebook Page